Who are we?
Youngtimers is a nonprofit that was started by a group of DIAD family members and other stakeholders to help better address the needs of DIAD individuals and families. Over the course of the last few years, many from this community have faced many difficult decisions and situations, either when it comes to making a decision about getting tested, coming up with better caregiving strategies, getting insurance, making family planning decisions, or figuring out how best to tell kids/friends/family about the disease. To date, we have yet to find an organization that helps us adequately navigate these difficult and complex issues that affect our unique disease population. We hope Youngtimers can fill this need.